Ace has Aicardi-Goutieres syndrome a rare degenerative neurological condition which calcifies parts of his brain. This impacts his ability to control his movement and communicate verbally. But with the support of his family and with years of hard work, Ace has reached a very special milestone.
Ace Bartlett has just learned how to wave hello.
This might seem like an insignificant milestone to some, but for those that know and love Ace like we do, we know this is an incredible achievement.
A donation today ensures Very Special Kids can be there for the firsts, the lasts and all the moments in between.