The importance of respite
Access to Very Special Kids Hospice, as well as the adjacent family accommodation, is very important to the Bozinis family.
Six-year-old George has an undiagnosed mitochondrial disorder. He is developmentally delayed, doesn’t walk or talk, and is fully reliant on someone to feed, toilet and bathe him.
His mother Cristina describes George as being a “very cheeky boy who has his own specialised walker that allows him to move around and gets up to mischief. He also loves playing with balls, horse riding and swimming at school.”
The Bozinis family access respite at Very Special Kids a few times a year, usually staying for three days at a time.
“George stays in the hospice and we visit him during the day and then we stay in the family accommodation and have some respite at night. At first it was hard to leave George at the hospice, and he is very attached to his dad. Being able to stay very close at the family accommodation, but still have some time to ourselves at night, works well for us,” Christina said.
Cristina Bozinis will be participating in the 24 Hour Treadmill Challenge as a part of the Northern Trust team, which is a team of her colleagues who are joining together to raise funds for children just like George.
All the funds you raise at the 24 Hour Treadmill Challenge will go directly to children just like George, who receive 24 hour specialist care at Very Special Kids Hospice. To sponsor a runner visit www.vsktreadmill.org.au
Categories: Family News, Fundraising News, Hospice News, Very Special Kids News