14 year old Imyjen Steele loves listening to music, riding the bus, and hanging out with her sister Auraria.
At three months old Imyjen was diagnosed with Swartz Jampel Syndrome, a condition preventing her from walking, talking or moving her muscles, and requiring her to use a wheelchair.
Caring for Imyjen is all consuming for single mum Christine Stow, who says she was confused about where to get help before finding Very Special Kids.
“Very Special Kids has been like a hand out of the darkness,” she said.
Christine said she was impressed that Very Special Kids Hospice had the equipment to cater for Imyjen’s needs.
“Getting care from other places was always a big hassle, but Very Special Kids is understanding and easy. I often found myself holding my breath with previous services, but when Imyjen’s at the hospice, I can relax,” she said.
It costs $7 million per year to operate Very Special Kids. Please help us continue to support children like Imyjen, and their families, by donating to the Very Special Kids Hospice Appeal.