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News

16
May 2019

By Fiona Kyprianou, a mother supported by Very Special Kids.Remembrance Day for our family is time set aside for the memory of our son Leo.It is a place where it is okay to let the tears flow freely amongst a warm and loving community who have supported us for the last 3... Read More


Categories: Family News, Very Special Kids News

Next week is National Palliative Care Week and Very Special Kids is proud to partner with Palliative Care Victoria to raise awareness on palliative care and embrace what matters most to people with a life-threatening condition and their families.Each year, 120,000 Australians... Read More


Categories: Family News, Hospice News, Very Special Kids News

The Philbin family from Malvern is one of the families that will benefit from the 24 Hour Treadmill Challenge’s fundraising efforts, and father Tom is also participating in the event himself.This is the second time Tom Philbin will be taking part, alongside his team of w... Read More


Categories: Family News, Fundraising News, Very Special Kids News

While many mothers might be getting breakfast in bed or a bunch of flowers this Mother’s Day, Bianca Bartlett will receive something she thought might never come: a wave hello from her son, Ace.Ace has Aicardi-Goutieres syndrome. A rare degenerative neurological condition t... Read More


Categories: Family News, Very Special Kids News

It’s often surprising what a child will say when asked what makes a mum special. Sometimes it’s the smallest most practical things that make a difference at other times it’s a beautiful hug or gentle touch.In any case we know that mums all around the world are special a... Read More


Categories: Family News, Very Special Kids News

Ace is seven years old and he has done the impossible.Ace has Aicardi-Goutieres syndrome a rare degenerative neurological condition which calcifies parts of his brain. This impacts his ability to control his movement and communicate verbally. But with the support of his fami... Read More


Categories: Family News, Fundraising News, Very Special Kids News

17
Apr 2019

By Damienne Mor, Family Support Practitioner at Very Special Kids “I don’t want to ask – I feel guilty that I’ll never be able to repay the favour,” is a comment I often hear from carers who are tirelessly and selflessly looking after their sick child whilst often ... Read More


Categories: Family News, Very Special Kids News

In early 2019 the Very Special Kids hospice team welcomed their first Child Life Therapist, Shari Manley into the fold.Child Life Therapists (CLT) are responsible for supporting a child to ensure their voice is heard and their needs are met within the healthcare environment. ... Read More


Categories: Family News, Hospice News, Very Special Kids News

15
Apr 2019

By Angela Flood, Family Support Practitioner at Very Special KidsHave you ever stopped and imagined what it might be like for a parent to hear the words ‘your child is going to die’. Have you wondered what those earth shattering, heart breaking, incomprehensible words mig... Read More


Categories: Family News, Very Special Kids News

Very Special Kids Ambassador Jimmy Rees has been dancing his way into our lounge rooms appearing on Network Ten’s Dancing With The Stars.But there’s more to Jimmy’s story that viewers may not be aware of. Although learning a new dance every week can be challenging, Jimm... Read More


Categories: Family News, Fundraising News, Very Special Kids News