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Mandy Lobley remembers fundraising to fill pink pigs at school, but little did she know the fond memories she had of ‘the pig charity’ would later become such a big part of her life.In conjunction with her role as carer in the hospice Mandy is studying genetic counselli... Read More


Categories: Family News, Hospice News, Very Special Kids News

When Jasmine was a new mother, she had gotten used to having little support due relocating as part of her partner’s career in the military.But when her second-born, Alicia, was diagnosed with a rare terminal illness, she knew she couldn’t continue without more support. ... Read More


Categories: Family News, Very Special Kids News

Pictured: Daniel and his son Marcus, who died in 2013.If there’s a piece of advice Daniel would pass onto all dads this Father’s Day, it’s to be present and to spend as much time with your kids as you can.“You can always get more money, but you can’t get more ti... Read More


Categories: Family News, Very Special Kids News

By Pauline Hammond, Grampians Region Family Support PractitionerFor those of us working in paediatric palliative care, the statement “You must be a special type of person to do the work you do”, is praise that we’ve all received, somewhat awkwardly, at one stage or anot... Read More


Categories: Family News, Very Special Kids News

Dying To Know Day (8 August) is an annual day of action dedicated to activating conversations and community actions around death, dying and bereavement.Very Special Kids is using this day as an opportunity to open up the discussion of how we, as a society of many cultures, fa... Read More


Categories: Family News, Hospice News, Very Special Kids News

By Shari Manley, Child Life TherapistDuring times of isolation when we are physically distant from family and friends there is nothing more comforting than a smile and warm welcome from a familiar face. Pip and Shari know first-hand the positive impact of seeing a friend and ... Read More


Categories: Family News, Hospice News, Very Special Kids News

Imagine dealing with the pain of knowing that your child is going to die. Thinking about your child’s funeral, and even discussing it with them, is something that many parents simply couldn’t face.That’s where Very Special Kids Family Support Team come in.While the ... Read More


Categories: Family News, Very Special Kids News

An important part of Very Special Kids services is the sibling support program, connecting young people who have, or have had, a brother or sister with a life-threatening condition. The adolescent program offers an annual camp providing siblings an opportunity to create treasured... Read More


Categories: Family News, Very Special Kids News

Can anyone truly understand the long and short-term impacts on a child following the death of their sibling without ever going through it themselves?It’s this notion that led to Very Special Kids Family Support Practitioner Meg Chin embarking on her PhD When a child dies fr... Read More


Categories: Family News, Very Special Kids News

Dr Bronwyn Sacks is Chief Medical Officer at Very Special Kids and Paediatric Palliative Care Specialist - Victorian Paediatric Palliative Care Program- based at the Royal Children’s Hospital and Monash Children’s Hospital.Here she explains more about her role at Very Sp... Read More


Categories: Family News, Hospice News, Very Special Kids News