We welcome referrals of children and adolescents with life-limiting conditions who meet our eligibility criteria. This criteria is outlined below.
Life-threatening conditions for which curative treatment may be feasible, but can fail. Where access to palliative care services may be necessary when treatment fails e.g. cancer (usually solid tumours), irreversible organ failures of heart, liver and kidneys.
Conditions where premature death is inevitable, where there may be long periods of intensive treatment aimed at prolonging life and allowing participation in other activities (e.g.duchenne muscular dystrophy)
Progressive conditions without curative treatment options, where treatment is exclusively palliative and may commonly extend over many years (e.g. Batten disease, mucopolysaccharidoses).
Irreversible, but non-progressive conditions causing severe disability leading to susceptibility to health complications and likelihood of premature death (e.g. severe cerebral palsy, neurodisability, birth injury, or an insult that follows an illness such as meningitis, encephalitis or head trauma).
Children or young people being referred under this category should fulfil most of the following
- Total body involvement with poor head control
- Severe scoliosis that compromises respiratory function
- Ongoing need for intervention in order to maintain respiration
- Regular apnoeic episodes
- Poorly controlled seizures despite optimum treatment
- Frequent unplanned hospital admissions
- Underlying complex nutritional condition which, without accurate assessment, would be life-threatening.
Reference: Together For Short Lives: A Core Care Pathway for Children with Life-limiting and Life-threatening conditions; 3rd Edition