Everyone you know is talking about NDIS, the good and the bad but how in the world do you navigate it?To say that NDIS can be frustrating at times is an understatement, but the hope that it offers is more often than not worth the battle.A key role for a parent who has a c... Read More

Hello my name is Lillian Preston, I am 8 years old and I had the best day ever at The Circus day with Very Special Kids.I was very nervous because I had never been to Very Special Kids before, but when my Mum and I arrived I knew straight away I was going to have so much fun.... Read More

36 treadmills were kept in continuous motion for 24 hours from 9am Fri 24 May to 9am Sat 25 May raising  $978,000 (and counting) for children in 24 hour care at Very Special Kids Hospice in Melbourne.Over 1,000 participants including AFL players, politicians... Read More

By Fiona Kyprianou, a mother supported by Very Special Kids.Remembrance Day for our family is time set aside for the memory of our son Leo.It is a place where it is okay to let the tears flow freely amongst a warm and loving community who have supported us for t... Read More

Next week is National Palliative Care Week and Very Special Kids is proud to partner with Palliative Care Victoria to raise awareness on palliative care and embrace what matters most to people with a life-threatening condition and their families.Each year, 120,000 Australians... Read More

The Philbin family from Malvern is one of the families that will benefit from the 24 Hour Treadmill Challenge’s fundraising efforts, and father Tom is also participating in the event himself.This is the second time Tom Philbin will be ta... Read More

While many mothers might be getting breakfast in bed or a bunch of flowers this Mother’s Day, Bianca Bartlett will receive something she thought might never come: a wave hello from her son, Ace.Ace has Aicardi-Goutieres syndrome. A rare degenerative neurolo... Read More

It’s often surprising what a child will say when asked what makes a mum special. Sometimes it’s the smallest most practical things that make a difference at other times it’s a beautiful hug or gentle touch.In any case we know that mums all around the world are special a... Read More

Ace is seven years old and he has done the impossible. Ace has Aicardi-Goutieres syndrome a rare degenerative neurological condition which calcifies parts of his brain. This impacts his ability to control his movement and communicate verbally. But with the su... Read More

By Damienne Mor, Family Support Practitioner at Very Special Kids “I don’t want to ask – I feel guilty that I’ll never be able to repay the favour,” is a comment I often hear from carers who are tirelessly and selflessly ... Read More