Family Resources
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Supporting bereaved families
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These resource documents were developed by parents who are engaged with Very Special Kids.
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Being OK - an article on grief
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Click here to download a copy of an article our Family Support Team Manager, Joan Hamilton-Roberts contributed to the Australian Psychological Society Counselling newsletter on managing grief.
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Recommended reading
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Please scroll down to review a list of recommended resources compiled for 'There's no such thing as a silly question' a practical guide for families living with a child with chronic illness, disability, mental illness or a life-threatening condition produced by Inter ACT and published by Very Special Kids in partnership with the Gandel Charitable Trust. You can also click on these links to jump straight to recommended titles for parents and recommended titles for children.
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Many of the titles listed below are available at the following specialist bookshops:
• Open Leaves Books Melbourne
79 Cardigan Street
Carlton 3053 Victoria
Telephone: (03) 9347 2355
Fax: (03) 9347 1430
Email: openleaves@openleaves.com.au
• Peoplemaking
375 Camberwell Road
Camberwell 3124 Victoria
Telephone: (03) 9813 2533
Fax: (03) 9813 2533
Email: books@peoplemaking.com.au
• St Luke’s Innovative Resources
137 McCrae Street
Bendigo 3550 Victoria
Telephone: 5442 0500
Fax: 5442 0555
Website: www.stlukes.org.au/resources
Email: stlukeir@stlukes.org.au
• The Resource Centre for Child Health and Safety is located
in the main building, first floor of the Royal Children's Hospital,
Melbourne, and is open to the public Monday to Friday
9:00am - 4:30pm (excluding public holidays and a
Christmas break.) Email queries to chic.bookshop@rch.org.au
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Publications For Parents
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• A Delicate Balance: Living successfully with chronic illness.
Wells, S.
1998. Plenum Publishing New York.
• Coping with Your Child’s Chronic Illness.
Barrett Singer, Alesia T.
1999 Robert D Reed Publishers, San Francisco CA.
• Easy For You To Say:
Q & As For Teens Living With Chronic Illness Or Disabilities
Miriam Kaufman.
2008. Firefly Books, US
• Listen – my child has a lot of living to do!
Caring for children with life threatening conditions.
Baum, J.D., Dominica, Sis F, Woodward, R.N. (eds)
1990. Oxford University Press. Oxford.
• Mum Says I’m Special, Aren’t We All?...Caring or Kids with Chronic Illness or Allergies.
Buchner, L.
2005 BAS Publishing, Australia
• Nonfinite Loss and Grief: A psychoeducational approach.
Bruce, E.J. and Schultz, C, L.
2001. Maclennan and Petty, Sydney, NSW.
• Siblings: Brothers and sisters of children with special needs.
Strohm, K.
2002. Wakefield Press, South Australia.
• The Art of Getting Well: A five step plan for maximizing health when you have a chronic illness.
Spero, D.
2002. Hunter House Inc, Alameda, CA.
• You Are Not Your Illness:
Seven principles for meeting the challenge.
1995. Topf, Linda Noble. Simon and Schuster, New York.
• You will dream new dreams
- inspiring personal stories by parents of children with disabilities.
Klein, S.D and Schive, K.
2002. Kensington Press. US.
• When your Child is Ill: A home guide for parents.
Valman, B.
2008. Dorling Kindersley, Melbourne.
• Articles - A Parent’s Perspective
“Welcome to Holland” by Emily Perl Kingsley
“Celebrating Holland” by Cathy Anthony
www.google.com
• Happy Kids books form a range of Children’s Health and Education Products specific to childhood conditions. Each book comprises 12 pages of interactive stories and puzzles for children. Central to each Happy Kids book is a character living with and learning more about their condition. There are currently 13 titles in the series, covering conditions such as epilepsy, diabetes, brain tumours and conductive deafness.
For more information contact Lisa Buchner;
Mobile: 0414 253 542
Website: www.smartarts.net.au Email: lisa@smartarts.net.au
• Parent To Parent: Raising Your Child With Special Needs
A joint publication of Deakin University and the Department of Human Services (Barwon-South Western Region) – this document provides advice, information and strategies from parents for parents, about raising children with special needs. A list of resources specific to the region is available. www.deakin.edu.au/dhs/parent_to_parent/
Note: The above listing is only a small selection of books suggested for inclusion in this resource book. Most support organisations will be able to provide more comprehensive bibliographies, which are condition specific.
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Publications For Kids
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• Bones: Our skeletal system.
Simon, S.
2000. Harper Trophy, New York.
• Don’t call me special: A first look at disability.
Thomas, P.
2005 Barron’s Edicational, London.
• I don’t want to go to hospital.
Ross, T.
2001. Picture Lion, London.
• Just for the day: A day's stay in hospital
Melbourne: Educational Resource Centre.
1994 Video recording, Royal Children's Hospital.
• The glow in the dark book of human skeletons.
Novak, M.
1997. Random House, New York.
• The visual dictionary of the skeleton.
1995. Dorling Kindersley, London.
• My Many Coloured Days.
Dr Seuss.
2001. Random House Children’s Books, U.K.
• When I’m Feeling Scared.
Moroney, T.
2005. Five Mile Press Pty Ltd, Australia
• When I’m Feeling Angry.
Moroney, T.
2005. Five Mile Press Pty Ltd, Australia
• When I’m Feeling Sad.
Moroney, T.
2005. Five Mile Press Pty Ltd, Australia
• When Molly was in hospital:
A book for brothers and sisters of hospitalized children.
Duncan, D.
1994. Rayve Publications. Windsor, CA.
Page 72
For Siblings
• Something Has Happened: an activity book for young children.
Irving, T.
2000. Skylight, N.Z
• Supporting Siblings:
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When a Brother or Sister has a Disability or Chronic Illness.
Association for Children with a Disability.
2003. Australia.
• The Huge Bag of Worries.
Ironside, V.
1998. Hodder Wayland, U.K
• When Someone Has A Very Serious Illness.
Heegaard, M.
1991. Woodland Press, U.S.A.
• When Tough Stuff Happens:
An Activity Book for Tough Times for 7-12 year olds.
Irving, T.
2001. Skylight, N.Z.
Page 73
Bereavement Literature
• Caring for Your Grieving Child
- Engaging Activities For Dealing With Loss and Transition.
Wakenshaw, M.
2002. New Harbinger Publications Inc. USA
• Coping with Grief.
McKissock, M and McKissock, D.
2006ABC Books, Sydney
• Grief Counselling & Grief Therapy
- handbook for mental health professionals.
Worden, J.W.
2004. (3rd ed) Brunner- Routledge. USA
• Muddles, Puddles and Sunshine:
Your activity book to help when someone has died.
Crossley, D.
2000. Hawthorn Press, U.K.
• Shadows in the Sun:
The Experiences of Sibling Bereavement in Childhood.
Davies, B.
1999. Taylor and Francis USA
• The Grief of Our Children
McKissock, D.
1998. ABC Books. Australia
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