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Who we are - Very Special Kids

Very Special Kids is a unique organisation that supports families throughout their experience of caring for children with life-threatening illnesses, from diagnosis through to recovery or bereavement. Such illnesses include cancer, muscular dystrophy, neuro-degenerative and genetic conditions and rare syndromes. Sadly, many of the children will not reach adulthood.

Very Special Kids provides a range of physical, emotional, social and spiritual support, which is offered:

  • holistically
  • centred on the family
  • to all Victorian families of children with life-threatening illnesses
  • with specialist staff and more than 200 trained Family Support Volunteers
  • with the engagement of the community
Currently, we support more than 800 families across Victoria. Our services include trained volunteer support, counselling, bereavement support, hospital visiting, a sibling program, family camps and activities, mothers’ activities, fathers’ activities, newsletters and care at Very Special Kids House, Australia’s first hospice for children, offering respite and end-of-life care.

It costs nearly $4 million per year to keep the doors open at Very Special Kids. As we rely on the generous support of the community to carry out our services, which are offered free-of-charge to families, all donations are gratefully accepted.


Accreditation


Very Special Kids is accredited by the Australian Council on Healthcare Standards and is a Registered Training Organisation, with our Family Support Volunteer Training Program being accredited by the Victorian Registration and Qualifications Authority.

Legal Entity


Very Special Kids is a Company Limited by Guarantee. Our Austalian Company Number (ACN) is 109 832 091 and our Australian Business Number (ABN) is 86 109 832 091.

Deductible Gift Recipient


Very Special Kids is endorsed as a deductible gift recipient under Subdivision 30-BA of the Income Tax Assessment Act 1997. All donations $2 and over are tax deductible.

Endorsement as an income tax exempt charitable entity


Very Special Kids is endorsed as an income tax exempt charitable entity under Subdivision 50-B of the Income Tax Assessment Act 1997.

Consumer Affairs Victoria Fundraiser Details


Very Special Kids fundraising registration number is 7593.




 
 
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